During the nights my son woke up screaming, I might get up 20 times to re-comfort him.
He usually ended up vomiting until he finally fell asleep. When he woke up in the morning it was gone.
As soon as he had learned to speak, he regularly asked “Take this pain away”

Two times he had a seizure. The neurologist did a CT-scan and an MRI which showed a problem with the left middle cerebral artery. She told us he had had a stroke.
Eventually they did a cerebral angiogram and told us he has Moya-Moya.

I was 19 years old and people often asked me why my voice was hoarse. My answer then was: “That is the voice I always had”

My hoarseness worsened in the past 4 years, but that was going so slow that my surrounding considered it as a part of my normal development. There was not only the worsening hoarseness but a sore throat as well. After a whole day of talking, my voice was gone. At the phone people did not understand me so well